In a landmark initiative to raise awareness and support for Amyotrophic Lateral Sclerosis (ALS) treatment in Africa, Ghanaian artiste Bra Jay has joined forces with ALS Africa for a groundbreaking event known as the Shaifest.
Bra Jay is collaborating with Pauline Ngugi, an ALS Disease advocate from Germany, for this worthy cause during this year’s Shaifest.
Pauline, is a specialist in Intensive Medicine working with ALS Patients in Germany who advocates for African ALS Patients in Africa to get support for medicines, while Bra Jay is a musician and the ALS Advocate for West Africa.
Beyond entertainment, the musician is using the Shaifest event to spotlight the urgent need for accessible ALS medications in Africa.
ALS, also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. While advancements have been made in ALS research and treatments in various parts of the world, access to these lifesaving drugs remains limited in Africa. Through Shaifest, Bra Jay and ALS Africa aim to lobby for improved access to ALS medication across the continent, emphasizing the need for equitable healthcare solutions.
“As an artiste, I feel a responsibility to use my platform to raise awareness about critical health issues affecting our communities. The Shaifest is not just a celebration of sports and music; it’s a call to action for policy change and support for those battling ALS.” he said.
The Shaifest is a three-day festival set to take place in Dodowa, Ghana from 2nd May to 4th May 2025 and it will feature a star-studded lineup of musical performances, sporting events, and community engagement activities. The festival aims to bring together artistes, athletes, and advocates, creating a vibrant atmosphere that fosters dialogue on health and wellness.
In addition to entertainment, the event will host panel discussions with medical experts, health advocates, and athletes who will share their insights on the importance of mental and physical health, especially for those living with chronic illnesses like ALS. These conversations are intended to inspire action and collaboration among stakeholders in the health and sports sectors.
The festival starts with a clean up exercise on Friday, May 2, football games and artiste night on Saturday, May 3 and a trip to the Chenku Waterfalls on Sunday, May 4, 2025.
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